Family Functionality: A Risk Factor for Tired Caregiver Syndrome

Abstract

Background: The role of the caregiver of dependent people with disabilities exerts a significant influence on the quality of life and health of the care recipient. Furthermore, it has been demonstrated that this role can precipitate the development of "tired caregiver syndrome," a phenomenon that merits further investigation within the Ecuadorian context. The objective of this study is to analyze the relationship between tired caregiver syndrome and family functionality, as well as the dependence of people with cerebral palsy sequelae, in two different population areas. Methods: The analytical, associative, cross-sectional research with a qualitative-quantitative approach was conducted to assess the variables of family functionality, caregiver burden, emotional well-being, and patient dependence. The study population comprised 24 individuals residing in the suburban and urban areas of Quito, ranging in age from 35 to 50 years, who were caregivers for a family member with cerebral palsy for a duration ranging from 18 to 25 years. These individuals were assessed using the Zarit Burden Assessment Scale, a tool designed to evaluate the burden experienced by caregivers. The Results of this study indicated that the participants exhibited symptoms consistent with the caregiver overload syndrome. In the urban area, the caregiver's burden is intense, accompanied by a moderate dependence on the patient.  In conclusion, caregivers in suburban areas reported a moderate patient dependence, accompanied by a relatively low caregiver burden. In suburban areas, caregivers maintain a relatively normal family function, exhibiting only mild fatigue in their caregiving roles. Conversely, in urban populations, caregivers experience a more pronounced burden, accompanied by mild family dysfunction.